International Reflex Sympathetic Dystrophy Foundation©

"Dedicated To Helping RSD Patients Worldwide"

Links

This section of our website is dedicated to RSD related links, RSD support group information, RSD events, RSD book information and many other helpful resources.

RSD Related Links

Dr. Hooshmand’s website: www.rsdrx.com

Dr. Hooshmand’s website is filled with the most informative information regarding RSD/CRPS. On this website you will find an abstract of the review article of 824 CRPS/RSD Patients that was published in Pain Digest (1999) 9:1-24. You will also find an abstract and full text article regarding Thermography and many other topics. Also you will find 146 of the ever popular RSD Puzzles© written by Dr. Hooshmand.

Here are some of the topics that you will find in the RSD Puzzle© section of this most helpful website:

What is RSD/CRPS, Spread of CRPS, RSD in Children, Dangerous Treatments, and Four F's Diet.

 

National Disease Research Interchange (NDRI) 

Contact info:

Sheila Curristin, PhD

Director, Rare Disease Program

The National Disease Research Interchange (NDRI)

8 Penn Center, Suite 800 

1628 JFK Boulevard

Philadelphia, PA 19103

Phone: 1-800-222-NDRI(6374)   

Phone: 215-557-7361 Ext: 232

www.ndriresource.org 

 

 

 

 

 

 

 

In, July of 2008 I was contacted by The National Disease Research Interchange (NDRI) in Philadelphia, PA. The NDRI is involved in doing tissue research for rare disease such as Reflex Sympathetic Dystrophy (RSD).

The NDRI is looking for people to make tissue donations. If you would like you can make a donation when you have surgery or you can make arrangements  before hand to donate your tissue at the time of your death.

I feel that making a tissue donation is a very import step to help finding a cure for RSD. In fact I had surgery to amputate my left leg on August 25, 2008 and I had made the decision to donate my tissue to The NDRI to help with their on going research to help finding a cure for RSD.

Eric

For more information please visit the National Disease Research Interchange (NDRI) website site at:   

www.ndriresource.org 

 

American Pain Foundation: http://www.painfoundation.org/

Clinical Trials: http://clinicaltrials.gov/

Disabilitysecrets.com provides tips, advice, explanations and answers to your Social Security Disability and RSD questions.

http://www.disabilitysecrets.com/social-security-disability-rsd.html

 

Thermography Links

American Academy of Thermology                                                

http://aathermology.org/

THERMOLOGY INTERNATIONAL
(formerly EUROPEAN JOURNAL OF THERMOLOGY)

http://www.europeanthermology.com/cms32/index.php?THERMOLOGY_INTERNATIONAL

New England Clinical Thermography, Incorporated                   

www.nemedtherm.com

 

RSD Events

This section of our website is where will post any up-coming RSD events that will be taking place around the RSD community.

Please check back soon for more updates.

* Please note: The International Reflex Sympathetic Dystrophy Foundation is not affiliated with any of the above mentioned events listed on this page.  This information is simply published as a general information source only.

 

Next Step Bionics & Prosthetics

As, a recent amputee I had the great pleasure and honor to meet Peter Couture, CP, President and Clinical Director of Next Step Bionics & Prosthetics located in Warwick, RI.

I met Peter prior to my amputation for a consult. Peter took the time to discuss my options that I may have after having an amputation. Since my case is not your typical amputation case due the fact that I suffer from Reflex Sympathetic Dystrophy (RSD). My amputation would be a little bit different for many reasons:

1. How would my RSD react to the amputation? Would the amputation cause my RSD pain to get worse?

2. How would my stump react to wearing the prosthetic?

3. Would I be able to stand or even take my first steps in more than 20 years?

Peter, took the time to listen to all my concerns and fears about having an amputation. Peter and his staff have made me feel so comfortable and confident that everything that I am doing will work out well for me.

Well, I must tell you that it has over 6 years since my surgeries (August 25 and 27, 2008). I had to have a two-stage amputation due to the infection in my left foot. On November 12, 2008, I was able to stand without the use of my crutches and I took my first steps in more than 20 years.

I, now recall the first meeting that I had with Peter. He told me that he would have me walking the first time I put on my new leg. Well, I must tell you that he was 100% right.

It has been more than 20 years since I last walked on two feet. With the help of Peter and his staff, I am able to take my Next Step in life.

I can't thank Peter and his staff enough for all their help and support. You all have made my life so much better.

All my Best!

Eric M. Phillips

Please visit Next Step's website at:

http://www.nextstepbionicsandprosthetics.com/

 

Medical Journal Links

BRITISH MEDICAL JOURNAL                                                          

http://www.bmj.com/

FREE MEDICAL JOURNALS.COM                           

http://www.freemedicaljournals.com/

NEW ENGLAND JOURNAL OF MEDICINE                             

http://content.nejm.org/

PAIN DIGEST                                     

http://link.springer.de/link/service/journals/00581/

 

Medication Links

Needy Meds website is designed to provide information about patient assistance programs which provide no cost prescription medications to eligible participants.

http://www.needymeds.com/

 

Medical Equipment Links

The American Medical Resources Foundation takes donations of used, functioning or repairable medical equipment and medical supplies are needed for shipments to charitable hospitals and clinics in developing countries. All equipment is inspected, tested and repaired by professional biomedical personnel before shipment. You can help us with equipment and supplies from your hospital or company. If you are considering selling or otherwise disposing of your medical equipment that you are replacing or not using, please consider donation.


Please remember that AMRF is a 501(c)(3) corporation. Your donation of equipment and supplies may be tax deductible. AMRF can arrange for pick up and transportation of donated materials that have been accepted.

http://www.amrf.com

 

Unrelated Links

 

The Artist Corner

This section of our link page is dedicated to RSD patients who are Artist.

Please click on the link below to view some wonderful art work created by a very talented Artist by the name of Catherine Lee Neifing.  http://www.catherinelee.com/index.html

 

Freddie’s Fabulous Hawaiian Teriyaki Sauce

If you are like me and want to cook and eat healthy, please try this wonderful Hawaiian Teriyaki Sauce. This is the best Hawaiian Teriyaki Sauce I have ever tried in my life. It is only 20 calories per Tbsp and it is very low in sodium, only 43 mg. I use it every night when I stir-fry. Once you try it you will be hooked!

Happy Cooking!

Eric

Please visit Freddie's website at: http://www.hawaiiansauce.com/index.html