This section of our website is dedicated to RSD related links, RSD support group information, RSD events, RSD book information and many other helpful resources.
RSD Related Links
Dr. Hooshmand’s website: www.rsdrx.com
Dr. Hooshmand’s website is filled with the most informative information regarding RSD/CRPS. On this website you will find an abstract of the review article of 824 CRPS/RSD Patients that was published in Pain Digest (1999) 9:1-24. You will also find an abstract and full text article regarding Thermography and many other topics. Also you will find 146 of the ever popular RSD Puzzles© written by Dr. Hooshmand.
Here are some of the topics that you will find in the RSD Puzzle© section of this most helpful website:
What is RSD/CRPS, Spread of CRPS, RSD in Children, Dangerous Treatments, and Four F's Diet.
National Disease Research Interchange (NDRI)
Sheila Curristin, PhD
Director, Rare Disease Program
The National Disease Research Interchange (NDRI)
8 Penn Center, Suite 800
1628 JFK Boulevard
Philadelphia, PA 19103
Phone: 215-557-7361 Ext: 232
In, July of 2008 I was contacted by The National Disease Research Interchange (NDRI) in Philadelphia, PA. The NDRI is involved in doing tissue research for rare disease such as Reflex Sympathetic Dystrophy (RSD).
The NDRI is looking for people to make tissue donations. If you would like you can make a donation when you have surgery or you can make arrangements before hand to donate your tissue at the time of your death.
I feel that making a tissue donation is a very import step to help finding a cure for RSD. In fact I had surgery to amputate my left leg on August 25, 2008 and I had made the decision to donate my tissue to The NDRI to help with their on going research to help finding a cure for RSD.
For more information please visit the National Disease Research Interchange (NDRI) website site at:
American Pain Foundation: http://www.painfoundation.org/
Clinical Trials: http://clinicaltrials.gov/
Disabilitysecrets.com provides tips, advice, explanations and answers to your Social Security Disability and RSD questions.
American Academy of Thermology
(formerly EUROPEAN JOURNAL OF THERMOLOGY)
New England Clinical Thermography, Incorporated
This section of our website is where will post any up-coming RSD events that will be taking place around the RSD community.
Please check back soon for more updates.
* Please note: The International Reflex Sympathetic Dystrophy Foundation is not affiliated with any of the above mentioned events listed on this page. This information is simply published as a general information source only.
Next Step Bionics & Prosthetics
As, a recent amputee I had the great pleasure and honor to meet Peter Couture, CP, President and Clinical Director of Next Step Bionics & Prosthetics located in Warwick, RI.
I met Peter prior to my amputation for a consult. Peter took the time to discuss my options that I may have after having an amputation. Since my case is not your typical amputation case due the fact that I suffer from Reflex Sympathetic Dystrophy (RSD). My amputation would be a little bit different for many reasons:
1. How would my RSD react to the amputation? Would the amputation cause my RSD pain to get worse?
2. How would my stump react to wearing the prosthetic?
3. Would I be able to stand or even take my first steps in more than 20 years?
Peter, took the time to listen to all my concerns and fears about having an amputation. Peter and his staff have made me feel so comfortable and confident that everything that I am doing will work out well for me.
Well, I must tell you that it has over 6 years since my surgeries (August 25 and 27, 2008). I had to have a two-stage amputation due to the infection in my left foot. On November 12, 2008, I was able to stand without the use of my crutches and I took my first steps in more than 20 years.
I, now recall the first meeting that I had with Peter. He told me that he would have me walking the first time I put on my new leg. Well, I must tell you that he was 100% right.
It has been more than 20 years since I last walked on two feet. With the help of Peter and his staff, I am able to take my Next Step in life.
I can't thank Peter and his staff enough for all their help and support. You all have made my life so much better.
All my Best!
Eric M. Phillips
Please visit Next Step's website at:
Medical Journal Links
BRITISH MEDICAL JOURNAL
FREE MEDICAL JOURNALS.COM
NEW ENGLAND JOURNAL OF MEDICINE
Needy Meds website is designed to provide information about patient assistance programs which provide no cost prescription medications to eligible participants.
Medical Equipment Links
The American Medical Resources Foundation takes donations of used, functioning or repairable medical equipment and medical supplies are needed for shipments to charitable hospitals and clinics in developing countries. All equipment is inspected, tested and repaired by professional biomedical personnel before shipment. You can help us with equipment and supplies from your hospital or company. If you are considering selling or otherwise disposing of your medical equipment that you are replacing or not using, please consider donation.
Please remember that AMRF is a 501(c)(3) corporation. Your donation of equipment and supplies may be tax deductible. AMRF can arrange for pick up and transportation of donated materials that have been accepted.
The Artist Corner
This section of our link page is dedicated to RSD patients who are Artist.
Please click on the link below to view some wonderful art work created by a very talented Artist by the name of Catherine Lee Neifing. http://www.catherinelee.com/index.html
Freddie’s Fabulous Hawaiian Teriyaki Sauce
If you are like me and want to cook and eat healthy, please try this wonderful Hawaiian Teriyaki Sauce. This is the best Hawaiian Teriyaki Sauce I have ever tried in my life. It is only 20 calories per Tbsp and it is very low in sodium, only 43 mg. I use it every night when I stir-fry. Once you try it you will be hooked!
Please visit Freddie's website at: http://www.hawaiiansauce.com/index.html