International Reflex Sympathetic Dystrophy Foundation©

"Dedicated To Helping RSD Patients Worldwide"

RSD Research

At the International RSD Foundation we are committed to helping RSD/CRPS patients with the latest information regarding clinical trials for treatment and research into this very puzzling disease we call RSD/CRPS.

New CRPS Project

(This project is now finished. Please see the results under the new topic Practical Resources)

I would like to inform the RSD/CRPS community that we have added a new member to our team here at the International RSD Foundation.

Erin, a health promotion Masters student, has joined the Foundation for a few months. Her practicum will be focused on creating health promotion resources for the CRPS community. She is a CRPS patient as well, so she understands the difficulties that come with diagnosis, treatment and trying to help others understand this condition. Her approach to this work includes talking to others in the community to find out what resources will be most valuable to supporting health. As such, this work will be driven by the topic areas, as well as, the types of resources, that are of greatest interest and need for you.

This project provides you with the opportunity to have your voice heard to inform some of the future work done by the Foundation! As part of a small project for the International RSD Foundation, we will be developing a few short written resources on topics of greatest interest to you: CRPS patients, and their support systems! 

So, we are looking for any CRPS patients, as well as those who support people living with CRPS (family, friend, etc.), who are interested in partaking in a short 5-8 equation survey to inform the direction and type of work completed! This information will also help inform future work completed by the Foundation.

CRPS Survey Information

Thank you so much for agreeing to take time out of your day to provide your valuable feedback. I am completing a practicum with Eric's International RSD Foundation. The information you provide in the survey will help me direct my efforts towards developing resources that are greatest support to the CRPS/RSD community.

The survey can be accessed through: https://www.surveymonkey.com/r/978NTWJ

If you could please provide feedback by March 31, I would greatly appreciate it. If you have any concerns with this time-frame please do not hesitate to email me.

If you have any questions at all, please do not hesitate to contact me via this email address eck234@hotmail.com .

Thank you again!

Wishing you all the best,

Erin

 

If you are interested please contact me at utopia33@prodigy.net

Thank you!

Eric

For more information regarding clinical trials and research please click on the link for clinical trials.