International RSD Foundation

"Dedicated To Helping RSD/CRPS Patients Worldwide"

New RSD Projects
 

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This section of our website we will post information regarding any new RSD/CRPS projects that are being done in the RSD/CRPS community. 

 

New CRPS Book Project (as of 12-15-2021)

Doctor Al and I are starting on two new book projects, volume 6 and 7 of the CRPS Book Series.

Below are the guideline for both books.

 

CRPS Book-Volume 6

Hi Everyone,

I would like to inform you that Dr. Alaa Abd-Elsayed and I are writing a sixth book regarding CRPS patient stories.

We would like to hear from anyone who would be interested in having their personal CRPS story published in our new book.

By having your CRPS story published, it would help other CRPS patients cope with their pain, help educate the medical community, help educate patients, family members, and friends.

The following criteria is needed to submit your story:

 How did you develop your CRPS (trauma or surgery)?

 How long have you had CRPS (Date of onset)?

 Type of surgeries you may have had. (Amputation, back surgery, carpal tunnel surgery, knee surgery, shoulder surgery, etc.…)

 What type of trauma did you have (soft tissue injury, crush injury, Venipuncture injury (needle injury), etc….)?

 What treatments have helped or not helped? (Please write about your treatments, therapies, opioids, procedures (nerve blocks, SCS, infusion pump, sympathectomy, psychological treatment, dates, and duration of treatments)

 How has CRPS changed your life? (For example, divorce, addiction, losing your job, becoming homeless, suicidal, etc.…)

 If you know of a CRPS patient who had committed suicide or died from complications due to CRPS, we would like to get in touch with their family.

You can write as many pages of your story as you would like, and please add a title for your story.

 Please feel free to add a few photos of your affected extremities (there photo’s will be used in our next volume of the CRPS Picture eBook series).

For your story you have an option to use your first and last name, just your initials, or you can be anonymous. (Please choose and let me know which option you are most comfortable with using for your story)

In regards to using a doctor’s name in your story, you need to have their written permission (this needs to be sent to us) to use their name or you can just use their first and last initials in your story (example: Dr. B or Dr. E.B. or you can just say my Neurologist, Orthopaedic, or my Surgeon, etc…).

In regards to using a doctor’s website, it can only be used if you have written permission from the doctor to use his/her website address (this needs to be sent to us). If you do not have written permission, we will have to remove it from your story.

If you have your own website address for an RSD-CRPS group, it can be used to help promote awareness for RSD-CRPS.

Please submit all stories in either a Microsoft Word document or a pdf file.

The deadline date to submit all stories is Tuesday March 1, 2022.

Please email me if you would like me to send you a sample story to help guide you in writing your story.

If you are interested in having your story published or have questions regarding this book project, please contact Eric Phillips by e-mail at utopia33@prodigy.net (please put CRPS Book in the subject line) or by phone or text at 508-479-9888.

For more info contact: Eric Phillips by email at utopia33@prodigy.net  or by phone or text at 508-479-9888.

We are looking forward to hearing from you.

Best regards,

Eric M. Phillips and Dr. Alaa Abd-Elsayed

 

CRPS Book-Volume 7

Hello Everyone,

I would like to inform you that Dr. Alaa Abd-Elsayed and I are writing a seventh book regarding a new topic: CRPS FROM THE SPOUSES AND CAREGIVERS PERSPECTIVE.

We would like to hear from anyone who would be interested in sharing their story from the spouses, loved one, or caregivers perspective to be published in our new book.

We feel that CRPS affects the whole family and it is vital that spouses and caregivers can share their experiences of living and caring for someone who suffers from CRPS.

By having your CRPS from the Spouses and Caregivers Perspective story published it would help other spouses and caregivers cope with living with someone with CRPS. This will help educate other CRPS patients, the medical community, family members, and friends.

The following criteria is needed for your story:

How has CRPS changed your life and the patient’s life? (For example, divorce, addiction, losing your job, becoming homeless, suicidal, etc.…)

How did your spouse develop CRPS (trauma or surgery)?

How long has your spouse had CRPS for (Date of onset)?

You can write as many pages of your story as you would like, and please add a title for your story.

For your story you have an option to use your first and last name, just your initials, or you can be anonymous. (Please, choose and let me know which option that you are most comfortable with using for your story).

 In regards to using a doctor’s name in your story, you need to have their written permission (this needs to be sent to us) to use their name or you can just use their first and last initials in your story (example: Dr. B or Dr. E.B. or you can just say my Neurologist, Orthopaedic, or my Surgeon, etc…).

 In regards to using a doctor’s website, it can only be used if you have written permission from the doctor to use his/her website address (this needs to be sent to us). If you do not have written permission, we will have to remove it from your story.

If you have your own website address for an RSD-CRPS group, it can be used to help promote awareness for RSD-CRPS.

Please submit all stories in either a Microsoft word document or a pdf file.

The deadline date to submit all stories is Tuesday March 1, 2022.

Please e-mail me if you would like me to send you a sample story to help guide you in writing your story.

If you are interested in having your story published or have questions regarding this book project, please contact Eric Phillips by e-mail at utopia33@prodigy.net (please put CRPS Book in the subject line) or by phone or text at 508-479-9888.

We are looking forward to hearing from you.

Best regards,

Dr. Alaa Abd-Elsayed and Eric M. Phillips